Little Miss Hannah - Fight against Neuronopathic Gauchers Disease type 23 Our Fight against Gauchers Disease type 2 or 3
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Sunday, November 13, 2011. Saturday, September 24, 2011. Ayah baru beli kolam baru. kolam nie ramai yang boleh masuk. siap ada tiang gol lagi. Wednesday, September 14, 2011. AIDILFITRI 2011 - KEDAH DARUL AMAN. Saturday, September 10, 2011. There was an error in this gadget. Taufiq - 1 yr 3 mons.
Tuesday, October 16, 2012. Yes, you and I, my friend, are sisters in a sorority. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail.
Saturday, May 24, 2014. In Which Connor Has Surgery. Wait We were told to expect the surgery would take at least six hours.
Monday, January 17, 2011. Who knew subluxes could be helpful? It was for me the other night. But any mama with a sick baby will bend over backwards for their child, and I had to, quite literally. My kids are luckily very healthy in general.
The Cast of Characters! Rebel and Suzy Speak! RIP Rebel Jedi Knight. Reviews of Anything and Everything. Confessions of a Psychotic Housewife. Duck and Wheel with String.
What Is Gaucher Disease? Types 2 and 3. Enzyme Testing for Gaucher Disease.
Building awareness and communities to support and find treatments for Rare Diseases. Audited Financials and IRS Forms. RARE Carousel of Possible Dreams.
This blog address is available. Got this from a Facebook account, the author is probably having trouble accessing his blog sites so I re-posted this for the world to read. This is a translated version of a post from this link. Considering her young age she has taught a lesson to us all.
A special thank you to The Pennsylvania Gazette for the feature cover story. Katherine Belle, age 6. This experience is hard in man.
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Little Miss Hannah - Fight against Neuronopathic Gauchers Disease type 23 Our Fight against Gauchers Disease type 2 or 3DESCRIPTION
Hannah Ostreas journey and fight against neuronopathic Gauchers disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and palliative care, and forever the fighter for a cure for Neuronopathic Gauchers disease. Hoping to connect all families of children with Gauchers type 2 and type 3 together.PARSED CONTENT
The website littlemisshannah.com had the following in the web page, "Our Fight against Gauchers Disease type 2 or 3." I analyzed that the webpage stated " If you have a child with GD23." They also stated " I am coming up on two years since my sweet little girl passed away. How could two years have passed yet I still feel as raw and affected as if it was yesterday. I am content with this new me. Happy? That weighs on me. I am forever a grieving mother but I dont wear this on the outside the large majority of the time." The meta header had rare disease as the first search term. This keyword was followed by childhood rare disease, neuronopathic, and d409 which isn't as important as rare disease. The other words they used was 84gg. lysosomal storage disease is also included but could not be understood by search engines.ANALYZE OTHER WEB SITES
Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. One Child at a Time. One Child at a Time.
December 30, 2008 by Overloaded Mama. Subscribe to Little Miss Hannah by Email. December 27, 2008 by Overloaded Mama. If you have us on your blogroll or links list, please update our information.
Monday, February 16, 2015. Sunday, June 2, 2013. Much has changed in my life since I started writing here so, so long ago. Where did the time go? Thank you for the last 4 years.
Future wedding planner, author and inspiration. Rain, rain, go away, come again another day! September 2, 2013. Hi to everyone who reads this,. I love to dream, all day, everyday.